Yesterday did not go as planned at our Ultrasound. First the good news, LB is growing perfectly, has 4 limbs and does not have Down Syndrome or Cystic Fibrosis.
Now onto the bad news. LB has a medium-large lung tumor on the side of heart. It is pretty much engulfing the entire cavity and is starting to encroach on the heart.
The doctors at this point have pointed out two possible conditions that this could be:
1. Congenital Cystic Adenomatoid Malformation (CCAM)
2. Broncho (pulmonary) sequestration
They will not know which condition the baby has until we have a series of ultrasounds and a MRI. I will be having ultrasounds every two weeks going forward.
Once they know which one this is, they will have a better idea of how to progress.
Regardless, Maternal Fetal Medicine is assembling a core team of surgeons to represent our little LB.
The fact remains that there is a extremely high likely hood that regardless of which condition LB has there is a major surgery that will have to take place. It is unknown at this point if it will be directly after delivery or within the first year of LBs life.
Apparently, for CCAM the chances of a baby having this condition is 1 in 10 thousand. I guess our little LB will be a fighter from day 1. It's going to have to be!
It's all so heartbreaking, you do everything you can to provide a safe environment for your baby and it's still not enough... How do I comprehend that no matter what I do it's not going to change this situation nor make it better? At this point how do I prepare myself and Chris for the unknown of when I deliver they will take LB away and possibly perform major surgery on LB and I as the mother can not even be there to comfort him/her.
Honestly, I've never felt more helpless in my life. I'm a educated and very resonable person but none of this makes sense to me.
I believe in Nature and the stars above to help us get through it all, but at the end of the day I don't want our baby to suffer ever! Apparently this is what being a mom is all about.
I am beyond thankful for my amazing and supportive husband, loving family and great friends. Without them I would be so lost.
So now we just sit back and wait....wait for two weeks to pass for the next ultrasound to revel more information..... tick.. tock...tick..tock.
Now onto the bad news. LB has a medium-large lung tumor on the side of heart. It is pretty much engulfing the entire cavity and is starting to encroach on the heart.
The doctors at this point have pointed out two possible conditions that this could be:
1. Congenital Cystic Adenomatoid Malformation (CCAM)
2. Broncho (pulmonary) sequestration
They will not know which condition the baby has until we have a series of ultrasounds and a MRI. I will be having ultrasounds every two weeks going forward.
Once they know which one this is, they will have a better idea of how to progress.
Regardless, Maternal Fetal Medicine is assembling a core team of surgeons to represent our little LB.
The fact remains that there is a extremely high likely hood that regardless of which condition LB has there is a major surgery that will have to take place. It is unknown at this point if it will be directly after delivery or within the first year of LBs life.
Apparently, for CCAM the chances of a baby having this condition is 1 in 10 thousand. I guess our little LB will be a fighter from day 1. It's going to have to be!
It's all so heartbreaking, you do everything you can to provide a safe environment for your baby and it's still not enough... How do I comprehend that no matter what I do it's not going to change this situation nor make it better? At this point how do I prepare myself and Chris for the unknown of when I deliver they will take LB away and possibly perform major surgery on LB and I as the mother can not even be there to comfort him/her.
Honestly, I've never felt more helpless in my life. I'm a educated and very resonable person but none of this makes sense to me.
I believe in Nature and the stars above to help us get through it all, but at the end of the day I don't want our baby to suffer ever! Apparently this is what being a mom is all about.
I am beyond thankful for my amazing and supportive husband, loving family and great friends. Without them I would be so lost.
So now we just sit back and wait....wait for two weeks to pass for the next ultrasound to revel more information..... tick.. tock...tick..tock.
Praying for all of you!! Sending Positive thoughts. Love you guys.
ReplyDeleteSo sorry that you got this news. It must be terribly stressful for you, as I'm sure you love little LB already. We are so blessed to live in a time in which intervention in this is possible. We'll hold you all in our thoughts and hope that this resolves in a very positive way. Sarah
ReplyDeleteMy thoughts and prayers are with you and little LB and Chris. Being a mom is one stressful journey, but as I am sure many have told you it is a journey well worth it. If you ever need anything please let me know, you helped me in so many ways, in the past. I believe I owe you a few. Thank you for sharing your pregnancy story.
ReplyDeleteThank you.. It's hard to believe that things like this can happen. But Chris and I have a positive attitude about it all. And with great surgeons and lots of love and support we will make it through with flying colors.
ReplyDeleteYour thoughts and prayers are very much appreciated!